“… Tucked inside one of those [budget] bills was the
Mikaela Naylon Give Kids a Chance Act, a groundbreaking piece of legislation for kids suffering from cancer.
… Bringing the bill to final passage proved a Sisyphean process. It was originally included as a rider on the Prescription Drug User Fee Act back in September 2022 before being removed at the last minute for reasons that remain somewhat unclear even to those who advocated for its passage. Then, in late December 2024, it was part of a major government funding deal that was suddenly scuttled after
Elon Musk threw a tantrum over the inclusion of any new spending provisions. Hours later, Senate Democrats moved to consider it as a standalone measure, but Rand Paul (R-Ky.) objected.
During the summer of 2025, the bill secured more than enough votes in both the Senate and the House for it to comfortably become law. But Congress works in mysterious, byzantine ways and it never got consideration; it was left dangling in the legislative ether, waiting for another moment.
That moment arrived in December, when the bill passed the House and found its way to the Senate. But an effort to move it through unanimous consent—which requires that no senator voice an objection to the measure—
failed once more. This time it was Sen. Bernie Sanders (I-Vt.) who objected. He wanted all the provisions that Musk insisted on removing in 2024 to be brought back. When he pushed for a bigger package, Senate Republicans pushed right back.
… “These kids didn’t want their life and their death to mean nothing. They wanted to contribute,” Nancy Goodman, the founder and executive director of
Kids v Cancer, told me. “Two of them specifically talked about that in the last days and weeks of their lives, that this is how they wanted to make a difference on earth, by getting this bill passed. This gave them a feeling of purpose.”…”