Covid is ruining my life.

  • Thread starter Thread starter Rock
  • Start date Start date
  • Replies: 79
  • Views: 2K
  • Off-Topic 
Hope you start feeling much better soon Rock!

Have you started any new meds recently, I mean other than the Paxlovid you took?
 
Kraftyheel89 said:
Hope you start feeling much better soon Rock!

Have you started any new meds recently, I mean other than the Paxlovid you took?
Click to expand...
No. It's likely just some Covid/covid long haul deal. Thanks for asking though.
 
I felt so bad today it's hard to describe. Then what's my reward? I think about sleep all day as though it'll be the greatest thing ever and of course I fall asleep for about 60 minutes and then wake up and now I'm going to get some trivial amount of sleep, if any.

I am not well.
 
There has to be a specialist who can help. If nothing else maybe offer some sort of sleep aid to try to normalize your sleep.
 
Is coughing what interrupts your sleep or breathing difficulty or what? As I mentioned earlier, an inhaler has been helping me sleep.
 
Rock. Really sorry you are struggling. For sleep, have talked with your doc about sleep aids? I take trazadone for sleep and it works wonderfully with no side effects and no danger of addiction. I’ve also heard recent research talks about long Covid being due to an over active inflammatory response. Ask your docs about that and if any new antiiflammatory drugs may be of benefit.
 
Kingpin said:
Rock. Really sorry you are struggling. For sleep, have talked with your doc about sleep aids? I take trazadone for sleep and it works wonderfully with no side effects and no danger of addiction. I’ve also heard recent research talks about long Covid being due to an over active inflammatory response. Ask your docs about that and if any new antiiflammatory drugs may be of benefit.
Click to expand...
One would hope that the docs are aware of that and would have prescribed anti-inflammatories if they were helpful under the circumstances. I mean, maybe not. Docs can screw up. But they have been treating Covid for quite a while now, so they should know the basics.
 
superrific said:
One would hope that the docs are aware of that and would have prescribed anti-inflammatories if they were helpful under the circumstances. I mean, maybe not. Docs can screw up. But they have been treating Covid for quite a while now, so they should know the basics.
Click to expand...
That depends very much on the doctor. Some keep up, others less so. The link between long Covid and inflammation is relatively new (within the last year) and standard NSAIDS or steroids would not do the trick. It’s a newer class of highly targeted antinflamatories that are only experimental at this time.
 
Kingpin said:
That depends very much on the doctor. Some keep up, others less so. The link between long Covid and inflammation is relatively new (within the last year) and standard NSAIDS or steroids would not do the trick. It’s a newer class of highly targeted antinflamatories that are only experimental at this time.
Click to expand...
OK. I had read about that link a while ago but maybe I just saw something about a preliminary link, or suspicions that there might be a link. And while I know that steroids were prescribed for long Covid, it seems as if those are known to be insufficient. Interesting. Thanks.
 
Rock said:
I felt so bad today it's hard to describe. Then what's my reward? I think about sleep all day as though it'll be the greatest thing ever and of course I fall asleep for about 60 minutes and then wake up and now I'm going to get some trivial amount of sleep, if any.

I am not well.
Click to expand...
Any better today?
 
Guys I'm sorry I haven't responded to each of you. I'm in such despair it's literally too daunting a task to reply.

I have some kind of post viral fatigue/post covid fatigue/long haul covid. I'm at day 43 or whatever and my main symptom is crushing fatigue and what might be POTS (HR goes from 55 sitting to 140 standing) and/or post exertional malaise. I am so exhausted I can't function, I don't even have the strength to wash my hands and put my contacts in. I'm losing nearly a pound a day it seems like. And the worst thing is I cannot sleep at all. I sleep for 30-90 minutes at most a night. I get some kind of hypnic jerk or sleep start problem where the second I'm about to doze, I get awakened.

Doctor tried to put me on sleep drug called Seroquel which is used in low doses for sleep (high doses for schizophrenia and stuff). I had a really bizarre reaction to it so I may try trazadone or mirtazaprine tonight.

I appreciate everyone attempting to help and all you guys have done.
 
As someone who has been there - allow yourself the peace of mind to not stress about the long term implications of what you are experiencing. As bad as the fatigue is, the POTS stuff is the scariest. At one point, I went to the Hillsborough ER because I hadn't gotten more than an hour of sleep for 13 out of 14 days (and on most days didn't get any at all). My heart rate was jumping between 50 and 140. Parts of my body felt numb, and I dropped a lot of weight (in part because my stomach was also fucked up and in part because my body was burning more energy because I couldn't sleep). You are on a long road to recovery, and it won't be easy, but you will get there. Take things a day at a time.
 
ChapelHillSooner said:
Do you have any cognitive issues or brain fog?

My brother has had severe cognitive issues from covid for years now. He seems normal when you talk to him other than the constant complaining about it but in his head it is bad in ways he can barely describe. The only thing that stuck out to me is that he is always sleep deprived but never ever feels sleepy.
Click to expand...
This a brain and gut relationship thing.
 
OGtruthhurts said:
Maybe that paxlovid poison is the cause. Why did you even take that if your immune system fought it off the first time? One day people will understand what a for profit healthcare system is about. Hint....its not about healthcare.
Click to expand...
It's not the cause. I didn't take paxlovid and had extremely similar symptoms to what Rock is describing. Sit this one out.
 
sringwal said:
As someone who has been there - allow yourself the peace of mind to not stress about the long term implications of what you are experiencing. As bad as the fatigue is, the POTS stuff is the scariest. At one point, I went to the Hillsborough ER because I hadn't gotten more than an hour of sleep for 13 out of 14 days (and on most days didn't get any at all). My heart rate was jumping between 50 and 140. Parts of my body felt numb, and I dropped a lot of weight (in part because my stomach was also fucked up and in part because my body was burning more energy because I couldn't sleep). You are on a long road to recovery, and it won't be easy, but you will get there. Take things a day at a time.
Click to expand...
What did you end up doing for sleep?
 
Rock said:
What did you end up doing for sleep?
Click to expand...
To reset my body, a few days worth of Ativan.

After that, I self medicated with some pretty strong delt 9, which made the brain fog worse, but helped me sleep (taking it also helped me regain an appetite and maintain my weight, even when my body was still having digestion issues).
 
Rock said:
Guys I'm sorry I haven't responded to each of you. I'm in such despair it's literally too daunting a task to reply.

I have some kind of post viral fatigue/post covid fatigue/long haul covid. I'm at day 43 or whatever and my main symptom is crushing fatigue and what might be POTS (HR goes from 55 sitting to 140 standing) and/or post exertional malaise. I am so exhausted I can't function, I don't even have the strength to wash my hands and put my contacts in. I'm losing nearly a pound a day it seems like. And the worst thing is I cannot sleep at all. I sleep for 30-90 minutes at most a night. I get some kind of hypnic jerk or sleep start problem where the second I'm about to doze, I get awakened.

Doctor tried to put me on sleep drug called Seroquel which is used in low doses for sleep (high doses for schizophrenia and stuff). I had a really bizarre reaction to it so I may try trazadone or mirtazaprine tonight.

I appreciate everyone attempting to help and all you guys have done.
Click to expand...
Dude, don't worry about responding to us. We get it.

I really wish I could do something to help. I've been there re: sleep difficulties. I know they suck. Mine eventually succumbed to the right sleep meds. I'm worried that you're in a doom loop of sorts, in which your exhaustion leads to no exercise, which leads to your body not wanting to sleep because it's not tired, and rinse and repeat. My wife's son has that going on sometimes, but not to your extent. His is autism/biorhythm related probably, not a gd virus.

One other thing to consider: I think I recall you mentioning at one point that you have some anxiety issues even in the best of times, and anxiety of course can make sleep very hard. Your report of awakening the minute you are about to doze -- I used to have that. I started taking a benzo for sleep and it worked really well.

Now, benzos are not usually recommended for sleep. I used the benzo after everything else didn't work (and there was less around), and it's pretty far from ideal. I take modafinil in the morning to perk me up after the nighttime benzo winds me down. On the other hand, I sleep. And when I was first prescribed the benzo, it was like manna from heaven. You pretty much need to cut out all alcohol if you're taking a benzo nightly, but I'm sure you'd take a trade of sleep + sobriety for what you're doing now.
 
You must log in or register to reply here.
Back
Top