superrific
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In my experience and my wife's view, Klonopin is better. That's what I take.
Covid is ruining my life.
- Thread starter Rock
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theel4life
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Sounds like you could be having some type of seizures.
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My cousin’s wife has had long haul covid for years. She’s just recently been talking about Red Light Therapy and how it’s helped her. I don’t her that well but she posts on Facebook about her condition. I can ask her for some tips.
sringwal
Honored Member
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Correction: the Ativan was a later visit.
I need to double check - I'm not actually sure that it was Ativan that time (I had another ER visit about a year later, as I was finally mending, but overworked myself - that time I know I took ativan, but I think it may have been something stronger the previous time).
sringwal
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Hypnic Jerks: Why You Twitch In Your Sleep
Hypnic jerks are sudden, involuntary muscle movements you may experience as you are falling asleep. Learn what may cause them and how to prevent them.
www.sleepfoundation.org
Hypnic jerks — also called sleep starts — are sudden, involuntary muscle contractions you may experience as you are falling asleep. Hypnic is short for hypnagogic, a word that describes the transition between wakefulness to sleep, which is when these jerks occur. Hypnic jerks happen seemingly at random as you are falling asleep, and typically only affect one side of the body, such as your left arm and left leg.
My gracious, Rock. I hate to see this happening to you. I hope something works ... and SOON.
tallheel95
Exceptional Member
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I read this essay and of course thought about you Rock. I'm so very sorry about what you are going through. I know enough about CE/MFS to get a sense of how hard this must be. I can imagine you feel exhausted, isolated, depressed and scared. I'm wondering if you ever got any sleeping medications on board? Keeping my fingers crossed that that time and some sort of medical intervention will help. Please make sure not to overexert yourself and be as kind and compassionate with yourself as you can possibly be. We're all rooting for you here.
www.nytimes.com
I Love You. Please Find Someone Else.
“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.
For anxiety, don’t use Benzos. They are highly addictive and hard to get off of on for awhile. SSRIs are the preferred option today- with added benefit of mood elevation.
superrific
Legend of ZZL
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I'm well aware of that. But benzos have their place and SSRIs are not a substitute. They are complements.
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Really appreciate this. I sent the link to my mom. She's definitely struggling with it because I've been leaning on her to help with my dogs. And she's probably worried about me of course. She's 78 and I have some friends that have helped walk them but I can't lean on everyone forever. I try not to think about the future but I've definitely had the thought about giving them away and all that. Just typing that makes me super depressed.I read this essay and of course thought about you Rock. I'm so very sorry about what you are going through. I know enough about CE/MFS to get a sense of how hard this must be. I can imagine you feel exhausted, isolated, depressed and scared. I'm wondering if you ever got any sleeping medications on board? Keeping my fingers crossed that that time and some sort of medical intervention will help. Please make sure not to overexert yourself and be as kind and compassionate with yourself as you can possibly be. We're all rooting for you here.
I Love You. Please Find Someone Else.
“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.
That's a big part of this. Knowing how much I can push myself. People that have or talk about long covid talk about resting as much as absolute possible. So two dogs that used to get walked for miles and miles a day are probably not the best thing to have when you're nearly bedridden. But, can I walk them around the block? Half a mile? Or am I doing damage just walking up the stairs? Post exertional malaise is what people call it when you overdo it and then pay for it with extreme fatigue, brain fog and all that. That's what I think I have at the moment. And I may have brought it on because my doctor, and two other doctors I know, said don't worry, you're not damaging your heart and exercise is good. Well, maybe for this.. it isn't. It's super frustrating that there's so much about this we don't know. Is part of the fatigue in my head? Maybe.
As to sleep, I did get some sleep last night on mirtapizine. 10-11 hours in fact. Wake up feeling rested? Sadly no. Besides the drug being super sedating, that's one of the worst parts about this. Either the Covid or the post exertional malaise, you get some sleep and where everyone else wakes up feeling better, we don't. Upon waking, 3 things happen, for about 5 seconds I think oh sweet I got some sleep. Then I do that scan of how I feel and yep, I'm still not better. Then I just lay there depressed for another day of misery. It's awful.
So, shortly I will pop 7.5mg of mirtazapine and hope that I sleep through the night, don't have any bad reactions to the drug, wake up and feel just a little bit better tomorrow, don't feel super sedated all day tomorrow because of the drug. It's just an endless battle.
Thanks for the link and sorry I wrote a novel. I'm trying to stay awake long enough that I can pop the pill and go to bed without my dogs being like why are we going to bed at 8 o clock. To add, I may be making my problems worse by staying awake when my body wants sleep. But whereas a normal person suffers no consequences for fighting off sleep for a few hours, I may be bedridden for a week or a month from it according to the literature. Hopefully not this time.
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I was gonna suggest some edibles for the sleep problems. It's the best sleep I can get and there is no hangover. I have been a complete insomniac since I was a child and have tried everything. I'd say the second best for me is Trazodone in terms of getting me to sleep and not feeling effects of the medication the next day. Ambien will obviously knock you out cold but I don't think it's quality sleep, but it's still better than no sleep. Hope you feel better soon Rock.
Duke Mu
Honored Member
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Rock - sorry to hear that. The COVID virus is a replicating machine and highjacks a critical enzyme in angiotensin II metabolism. Angiotensin [1-7], a truncated form of angiotensin II is too low. There's a chronic imbalance in pro- vs. anti- inflammatory proteins that can stroke multiple organs.
We were up in Arkansas for a funeral and 5 of the family caught COVID. First time for me and Paxlovid was a life/health saver. Still, I feel like I'm still recovering two weeks later.
www.mdpi.com
pmc.ncbi.nlm.nih.gov
pmc.ncbi.nlm.nih.gov
We were up in Arkansas for a funeral and 5 of the family caught COVID. First time for me and Paxlovid was a life/health saver. Still, I feel like I'm still recovering two weeks later.
The Renin–Angiotensin System in COVID-19: Can Long COVID Be Predicted?
(1) Background: Co-morbidities such as hypertension and cardiovascular disease are major risk factors for severe COVID-19. The renin–angiotensin system (RAS) is critically involved in their pathophysiology and is counter-balanced by both angiotensin-converting enzyme 2 (ACE2), the functional...
www.mdpi.com
Role of the Renin-Angiotensin System in Long COVID’s Cardiovascular Injuries - PMC
The renin-angiotensin system (RAS) is one of the biggest challenges of cardiovascular medicine. The significance of the RAS in the chronic progression of SARS-CoV-2 infection and its consequences is one of the topics that are currently being mostly ...
pmc.ncbi.nlm.nih.gov
Role of ACE2-Ang (1–7)-Mas axis in post-COVID-19 complications and its dietary modulation - PMC
Severe acute respiratory syndrome-coronavirus-2 (COVID-19) virus uses Angiotensin-Converting Enzyme 2 (ACE2) as a gateway for their entry into the human body. The ACE2 with cleaved products have emerged as major contributing factors to multiple ...
pmc.ncbi.nlm.nih.gov
gtyellowjacket
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How ya feeling Rock? Any improvement?
WaynetheDrain
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Checking in on Rock. How are you doing, brother?
lawtig02
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I know a number of people struggling tremendously with Long Covid right now. It's not a joke. Most of us are lucky enough to avoid it, but for those who struggle with it, it's life altering.
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Appreciate you and everyone else checking in. Today is day 52, I think, and unfortunately, it didn't seem to be a good day. Just felt lightheaded and dizzy all day. Fatigued more than usual, which is saying something. And so it becomes a thing of figuring out why. Did I eat too many carbs yesterday? I've lost 30 pounds so my appetite coming back should be a good thing but maybe not. Or did I just exert myself too hard yesterday? I walked my dogs a combined 15 whole minutes at the pace of a 90 year old.
I'm quite low. I'm starting to have to consider things like, do I give up my dogs? I can't walk them and I can't afford to pay someone to walk them for very long. I have terrible insurance as a teacher and I'm so far in debt it would make your head spin. Here is what my dogs are used to:
My 78 year old mom is trying to help walking them but it's about to snow again so Kansas winters doing me a big help there. Don't want her to break a hip.
Anyway, I'm just exceptionally low and I don't see a lot of light ahead of me. Some people that have this are so fatigued they can't leave bed and I'm freaking out I'm headed in that direction. So many of the unknowns are the problem. Doctors seemingly not understanding this disease, or whatever it is, is all the more tortuous. I feel sorry for all the people who have said they have chronic fatigue and weren't taken seriously.
Sorry, again, I don't mean to be so depressing. It's just bleak. I don't know what else to say.
Appreciate you asking and hug your loved ones and cherish your health and all that.
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Rock—Appreciate you and everyone else checking in. Today is day 52, I think, and unfortunately, it didn't seem to be a good day. Just felt lightheaded and dizzy all day. Fatigued more than usual, which is saying something. And so it becomes a thing of figuring out why. Did I eat too many carbs yesterday? I've lost 30 pounds so my appetite coming back should be a good thing but maybe not. Or did I just exert myself too hard yesterday? I walked my dogs a combined 15 whole minutes at the pace of a 90 year old.
I'm quite low. I'm starting to have to consider things like, do I give up my dogs? I can't walk them and I can't afford to pay someone to walk them for very long. I have terrible insurance as a teacher and I'm so far in debt it would make your head spin. Here is what my dogs are used to:
My 78 year old mom is trying to help walking them but it's about to snow again so Kansas winters doing me a big help there. Don't want her to break a hip.
Anyway, I'm just exceptionally low and I don't see a lot of light ahead of me. Some people that have this are so fatigued they can't leave bed and I'm freaking out I'm headed in that direction. So many of the unknowns are the problem. Doctors seemingly not understanding this disease, or whatever it is, is all the more tortuous. I feel sorry for all the people who have said they have chronic fatigue and weren't taken seriously.
Sorry, again, I don't mean to be so depressing. It's just bleak. I don't know what else to say.
Appreciate you asking and hug your loved ones and cherish your health and all that.
I’m so sorry you’re still dealing with this. I wish there was something I could do to help. Keep us posted. We’re all thinking of you.