“… Lougheed has Level 1 autism. Her son has Level 3 autism. But they are both diagnosed under the same broad umbrella of autism spectrum disorder.
Now, the national conversation around autism has reignited debate over whether one label can truly encompass such different experiences—and, more broadly, whether autism is more of a form of neurodiversity or a disability in need of better treatments or even a cure.
“My son has such a different diagnosis than me,” says Lougheed, who lives in Salem, Ore. “I can intellectualize all of this, I can live a normal life. I got married, had kids. I was able to have a job. I know there’s some hereditary thing that connects them, but I believe there should be something separating us so that those [who are more profoundly autistic] can get more help.”
Developing a more nuanced set of groups with autism will help everyone get the care and interventions they need, says Dr. Matthew Siegel, chief of clinical enterprise for Boston Children’s Hospital.
“Using the same term for individuals who are non-speaking and cannot care for themselves and for individuals who are college professors makes no sense, and does a disservice to all,” he says.…”