Background on the program I work with. Rs have been fighting funding every step of the way, and are now pretending to be shocked that we still don’t know the full scope of Long COVID effects.
Why do some people develop disabling chronic conditions after the initial viral infection?
www.nbcnews.com
To be clear, I work in communications and scientific editing. So I’m not on the front lines…but I help write/edit studies and get media stories published, and write/edit website content, as well as guidelines for researchers and a bunch of other stuff. My work is funded by the RECOVER initiative, which is apparently what’s being shut down.
“The Centers for Disease Control and Prevention has estimated that 1 in 20 adults in the U.S., or about 14 million, are
living with long Covid. Other data shows that up to
5.8 million childrenmay be affected by the condition as well. However, experts say these numbers are likely underestimated because there’s no official surveillance system in place.
A $1 billion research initiative called
RECOVERlaunched by the National Institutes of Health to find the causes of long Covid, as well as potential treatments,
has fallen short on its promises, scientists and patient advocates say.
Meanwhile, experts fear that the Trump administration’s extreme cuts in federal spending may
undermine long Covid research efforts, which could further delay the discovery of therapies. Just last month, President Donald Trump terminated the Health and Human Services Secretary’s
Advisory Committee on Long COVID.
Dr. W. Michael Brode, medical director of UT Health Austin’s
Post-COVID-19 Program in Texas, said, “We’re building the boat while we’re at sea, trying to figure it out together [with patients] … but we absolutely need to build on the progress we’ve already made.”
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ETA: I probably should’ve read the info at the link NYC posted above.
“The HHS staffer said that as far as the team has been told, the NIH’s
more than $1 billion Recover Initiative funding clinical trials related to long Covid will continue. But even if that is the case, current and former employees warn that closing the office will hurt collaboration and communication among researchers as well as social services for patients.
“Long COVID impacts every facet of somebody’s life — their ability to go to school, their ability to take care of their children, their ability to go to work and get health care,” the staffer said. “So it’s not just clinical trials that need to happen. How does somebody who can no longer take care of themselves, and there’s no medical solution yet, how do they live a life?”
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So perhaps my job is safe for a couple weeks, till the admin decides to shut down the RECOVER initiative.